Getting in Touch with Others
Getting in Touch with Others
Sotos
Syndrome Support Association of Canada
SSSAC/ACESS was incorporated
January 2002 to provide educational and emotional support to Canadian families
of persons with Sotos syndrome and to provide a better understanding to parents,
government and the public at large of Sotos syndrome (Cerebral Gigantism)
through education. You can also contact the SSSAC
by email.
The
Eltern-Initiative Sotos-Syndrom [EISS]
A new homepage (auf Deutsch) dedicated to Sotos Syndrome and family support from Germany. There are some great pictures inside -- check it out!!!
You can also contact the EISS by
email.
A Support Group for Sotos Syndrome in Australia
If you're from the land down under or just want to share with others who know about Sotos Syndrome, drop a line to
Robert and Debbie Hope.
The UK Child Growth Foundation
The UK's leading charity trying to ensure that every child's growth is regularly assessed and cares throughout life for the children who do not grow enough or grow too much. It is the umbrella organisation for : GROWTH HORMONE INSUFFICIENCY, TURNER SYNDROME, IUGR/RUSSELL SILVER, BONE DYSPLASIA, SOTOS AND PREMATURE SEXUAL MATURATION patient/ parent support groups.
Sotos Association - L'Eveil -- get in touch with the newest support group from France...
Parenting the Child with Special Needs
Enter into a dialog with other parents about anything you want (related to the topic, of course). A thread has been started to talk about Sotos Syndrome. Check it out ....
Parents Place
Communicate with others on the topics that may interest you.
Genetics Education Center - UKMC
University of Kansas Medical Center - Other genetic education programs, professionals working with teachers.
Family Village
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, their families, and those that provide them services and supports.
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