Brian Slesinsky (bslesins) Sun 21 Apr 02 18:23
The decapitation thing is sort of a cut-rate knockoff of a cold war nuclear scare. I suppose the difference is that the other side is crazier. Then again, before we had hindsight, maybe the sanity of soviet premiers wasn't so certain either.
Jon Lebkowsky (jonl) Sun 21 Apr 02 20:07
You can also find the speech at http://www.viridiandesign.org/notes/301-350/00309_cfp_speech.html
Paulina Borsook (loris) Mon 22 Apr 02 00:17
it's 'jon' not 'john' callas, btw [g]
Bob 'rab' Bickford (rab) Mon 22 Apr 02 11:56
Gawd, I haven't been to Toad Hall for.... what, almost ten years?!? How is the old place? He was doing some remodelling work when I was last there.....
Amazon.com sales ranking: 1,304,455 (wendyg) Mon 22 Apr 02 21:50
Fred von Lohmann is certainly good on copyright; less impressed with his social skills after inviting him to join me and Lenny Foner in conversation at last October's P2P and watching him angle his chair towartd Lenny and talk only to him for more than half an hour... wg
Gail Williams (gail) Mon 22 Apr 02 22:09
Gail Williams (gail) Mon 22 Apr 02 22:13
I'm looking over some of the notes I didn't post. During Bruce Sterling I didn't take notes, since his delivery is tough to convey, he posts the speech anyway, and it's more fun to laugh than annotate.
Martha Soukup (soukup) Mon 22 Apr 02 23:08
Well, I'd talk to Lenny for half an hour but it's just because I've only seen him once or twice in five years.
Gail Williams (gail) Tue 23 Apr 02 00:02
Notes from health privacy session, Thursday: Dr. G Fowler addressed genetic privacy. http://www.geneforum.org/ Oregon genetic privacy site. 300 million samples are held in the nation's tissue banks. "You look like a room of healthy normal people, your tissue samples should each show five bad genes on the average..." and the data may pose privacy risks to your blood relatives, he told us. Privacy is sometimes breached to give patients needed care when something is identified in a survey of tissue samples. Privacy is also breached sometimes after studies, to find out what the subjects died of if they are dead. Some flexibility has been part of the system so far, though federal studies are better protected than those paid for in other ways. Who owns genetic information? Oregon had tried to establish that your genetic material is yours. Question is still a good one. Who owns your tissue or blood sample? Who owns the information? Do your relatives, cops, doctors, the military, the courts have rights to the information or the tissue? Should pharmaceutical companies have rights to your data? How do we protect people from documented discrimination while letting research continue? On the geneforum site, people overwhelmingly felt that violations should be felonies, though they are only minor misdemeanors under Oregon law. When you are sick, you want all useful access to your records. The society in general wants research, wants epidemiology if there is an outbreak of a communicable disease, and wants privacy. These needs may conflict. Opt in consent for release to your employer is a strong value, and is currently at risk during HIPAA review. 13% of our GDP is health. Every health plan will have a staff privqcy expert by next year. There's a huge demand for HIPAA privacy officers in health institutions. Background in short is that Congress failed to pass a privacy bill to go with new computerized reimbursement and medicare payments systems for hospitals, and lacking legislation the HIPAA rule went into effect as a consequence. It was drafted by Clinton administration late in 2000. At first it seemed Bush would overturn all of it, but he retained most major sections. The Bush changes, even though fewer than expected, would weaken the federal health privacy regulation, and the final day for comment is this FRIDAY, the 26th. There's a letter-writing campaign with a focus on two issues, both eliminating written consent before medical records are disclosed, and permitting health plans and drug stores to engage in marketing without having to get permission To see an advocate's point of view and to get letter writing help, see http://healthprivacy.org or for the HMO view, see http://www.aahp.org To read the regulation and call for comments itself, see http://www.hhs.gov/ocr/hipaa The Bush changes also gave parents more rights to the medical records of their kids (including reproductive and mental health records) but set it up so that more protective state laws exist, they take precedence, so that was a relief to many who'd expected him to force that policy nationally. The Kaiser rep -- Mary Henderson -- spoke of quandaries and over-zealous regulations, such as a proposed rule that listed kinds of private data which must not go with medical data for research. The list included date of birth (needed to understand age-related desease) and location of treatment (needed by institution to redress any problems at specific facilities). These costs of compliance were interesting. One interesting question was about the DNA collected to identify victims in the world trade towers and whether the feds would keep the data even though it could reveal secrets of the living relatives. The panelists didn't know what the status is, but the relatives should follow up. It was a worthwhile round-up and there is time to act on the federal regulations.
Amazon.com sales ranking: 1,304,455 (wendyg) Tue 23 Apr 02 07:15
soukup: so would I. but would you ignore ME? wg
Martha Soukup (soukup) Tue 23 Apr 02 11:32
Gail Williams (gail) Tue 23 Apr 02 11:34
I know I don't.
Jon Lebkowsky (jonl) Tue 23 Apr 02 13:24
Ignore who? heh.
Declan McCullagh (declan) Fri 17 May 02 07:30
I've finally (sorry for the delay) posted my CFP and Politech dinner photos on mccullagh.org... CFP photos: http://www.mccullagh.org/theme/cfp02-highlights.html http://www.mccullagh.org/theme/cfp02.html http://www.mccullagh.org/theme/eff-pioneer-awards-apr02.html http://www.mccullagh.org/theme/bigbrother-apr02.html Politech dinner: http://www.mccullagh.org/theme/politech-dinner-apr02.html
Gail Williams (gail) Fri 17 May 02 10:04
Gail Williams (gail) Thu 27 Mar 03 15:44
This event is about to unfold (during wartime!) for 2003. The line-up is interesting, all kinds of people and issues to catch your eye: http://www.cfp2003.org/ Wish i could be there. Some of these sound great, some classic CFP fodder, some new and exciting -- here's a smattering of sessions: The Patriot II and Electronic Surveillance Internet Architecture & Free Speech Human Rights and the Internet China - Internet Filtering and Free Expression Promoting Human Rights Online During Wartime Video Surveillance Tour of Manhattan by the Surveillance Camera Players Can Free Speech Survive the New Intellectual Property Regimes
Jon Lebkowsky (jonl) Thu 27 Mar 03 19:05
I can't be there, but I will be in Santa Clara Apr 21-25 for Emerging Technology. We should set up something for that one, too...?
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